Patna5 hours ago
There is a gap of 120 days between the life and death of 20-month-old Ayans. If he gets the injection before the completion of two years, then he will get a new life, otherwise the risk of death will increase. The life of Ayans, who was suffering from SMA (Spinal Muscular Astrophy) disease, breathed through the throat and took liquid diet from the stomach, now rests on a single injection of 160 million.
Funding of 8 crores has been done with the help of people, but now 8 crores more is needed. Doctors have given 4 months (120 days) for the injection. The victim’s family has appealed for help from Bollywood star Sonu Sood to the leaders of Bihar. A request has also been made to the leaders who are vying to help Sonu of Nalanda, who have forgotten the innocent by going to Ayans’s house and promising help.
Mother’s plea to save child
fight for life every day
There is no confidence when the 20-month-old son of Patna-based Alok and Neha Singh’s 20-month-old son Ayans will stop breathing. He is now completely on home ventilator. Arrangements for liquid diet have been made by putting a pipe in the neck and breathing by putting a pipe in the stomach. Ayans has been battling between life and death ever since he was diagnosed with SMA (Spinal Muscular Astrophy) a year ago. Every day begins the day only after the battle with his death.
After the disease was detected, doctors had talked about saving life with an injection within 2 years, but its cost is 16 crores. Within a year his condition had completely deteriorated. Now he is neither able to breathe through his mouth nor can he eat anything. There is a pipe in the throat for breathing and in the stomach for food.
Dainik Bhaskar raised the matter Is.
Now if 8 crores more come in 120 days, then Ayans’s life can be saved. Ayans’ mother Neha Singh says that at this time the funding has completely stopped. Now due to lack of funding, hope is being lost, if it remains like this, Ayans will not be able to get the injection. The injection will be effective within two years and Ayans has completed 20 months of age.
After the news of Bhaskar, hands extended for helping
Sahara made syrup of 100 ml for 6 lakhs
Ayans’ mother Neha says that her son is on home ventilator. All types of machines have been installed at home. He is kept alive with his help. The doctors have given a 100 ml syrup, which costs 6 lakh 12 thousand, it gives him some relief, but he will be able to get life through injection.
Neha says that she has met many big leaders including Lalu Yadav, Tejashwi Yadav, Pappu Yadav to help Ayans, some helped and some came home and made promises, but forgot. She is now seeking cooperation from Sonu Sood to the leaders of Bihar to save the life of Ayans. She is also begging for help for the life of her child from the politicians who are vying to help Sonu of Nalanda.